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08/06/2017

Reality Check

An age ago (April) i rang for a DLA form. I've just received payment in my account, it would seem he qualifies for middle rate care. When i rang up, filled it in, even until yesterday i thought he would never qualify. At most i thought we had a chance at low rate so i was quite surprised but also disappointed. His needs are more than i thought.

It also seems it depends very much on whose desk the form lands on. Our form was filled in without professional help, we have no diagnosis, he's only 5 so has all the needs of a small child! We also had very little in the way of evidence other than the ASD referral & his school exclusion. I did include extra sheets on the support he receives in school, our struggles with public transport and his incredibly fussy eating habits.


Our form was processed pretty quickly too, school & speech therapy weren't contacted either. The person literally looked at what i'd written and believed it. It just shows that it's always worth a go, you may be pleasantly surprised as we are.

26/05/2017

Progress

First TAF meeting was enlightening. Me & 5 professionals plus our lovely SENCo. We seem to have a decent team and it wasn't totally intimidating.

First the bad bits. A parenting course has been offered, i shall jump through the hoop & it may even be useful with Little Man. Halfway through The Head popped in with a safeguarding issue. Big Man seems to think he's been playing out unsupervised. I've been assured this is no reflection on us but let's face it, if our parenting is questioned we can present Little Man. I also got 'see if Dad can attend some meetings.' How do people work & have kids with additional needs? If I worked they'd have sacked me for poor attendance by now.

The good bits? It seemed very productive, our Ed Psych seems enthusiastic and Little Man may get some support out of it. We've got more strategies to try and since returning to school there have been no incidents.

12/05/2017

Reintegration?

Well those reintegration meetings are lovely. 3 adults plus Mum all sat discussing Big Man and what he did wrong 3 days ago. Not at all intimidating or shaming.
We now have a "meet and greet" arrangement whereby we drop off & collect at the front entrance. This could be a good thing as long as it doesn't become permanent. If his nails are too long or too sharp (he grabs a lot) he will be sent away until they are more suitable. He is now eating lunch away from other children, i'm not sure about this but he prefers it and i guess he gets a break.
If he is formally excluded again (i think he will be) a reduced timetable will be the most likely result. This is the bit i dislike. I do not want him missing education due to his sensory needs just as much as i do not want him hurting people.

On a positive note we now have a TAF meeting to look forward to, Ed Psyche referral among others and most people involved seem to be more proactive. I do wonder if they allowed him to fail in order to gain the assessments & support. I suspect the Headteacher will put on a show of assistance and help, but we appear to be moving to opposing sides. I'm becoming that parent both at school and at home.


For info on exclusions & reduced timetables these have been quite useful. Also worth trying local council & the usual social media forums.
Ipsea   Sendiass   

10/05/2017

Exclusions, Paperwork & Referrals

So we've just had our first formal exclusion for poor behaviour. He started with a nasty cold that night so there's the explanation!
After phone calls & emails it's been decided he'll return tomorrow morning but his exclusion has triggered referrals. One is the Health Visitor due to concerns for Little Man's safety. Ironically he isn't a target much now but I'm concerned as to what other interest this may have triggered. If it means we get some useful professionals out of it fair enough.
We're also just sending off our first attempt at a DLA form. I can't imagine it'll be granted but I may have lots more paperwork to send them after our meeting with school.
Currently anxious with a mind that won't quit. Think happy thoughts!